Public engagement research
The Administrative Data Taskforce was responsible for making the recommendations to establish the Administrative Data Research Network. They highlighted the need for robust communication and awareness raising but also the need for public dialogue and debate and the engagement of publics in our research and activities.
As part of the work that went into establishing the
The ADRN understands that public perception and attitudes change and new questions may need to be taken to publics for discussion; to that end researchers are undertaking research with publics across the network.
In Northern Ireland, Professor Gillian Robinson and Professor Helen Dolk have led a research project ‘Public attitudes to data sharing in Northern Ireland’ using the Northern Ireland Life and Times (NILT) survey.
ADRC Wales has developed a public opinion poll. The purpose of the study is to gauge the general public's opinion about the use of anonymised data for medical research.
ADRC-Scotland’s Public Engagement Lead, Professor Sarah Cunningham-Burley, published a systematic review on public views of data linkages (with a focus on health data).